Our Practice
Accessing someone else’s information
Accessing someone else’s information
As a parent, family member or carer, you may be able to access services for someone else. We call this having proxy access. We can set this up for you if you are both registered with us.
To requests proxy access collect a proxy access form from reception from 10am to 6pm
Linked profiles in your NHS account
Once proxy access is set up, you can access the other person’s profile in your NHS account, using the NHS App or website.
The NHS website has information about using linked profiles to access services for someone else.
Complaints and Compliments Procedure
Stowhealth aims to provide the highest level of care to all our patients, and is keen to understand patient’s experiences of the services we deliver. We will always be willing to hear if there is any way that you think that we can improve the service we provide, so we can use this as learning to improve any identified service failures. Patient feedback also helps us to identify what we are doing well and assists us in implementing further improvements, providing an overall benefit to all our patients.Introduction
This policy is aimed at anyone who is dissatisfied with any services delivered by Stowhealth, and is considering contacting us seeking a viable solution. Also, for anyone wishing to share positive feedback following actions taken by any member of staff working for Stowhealth who have made a valuable difference to them, a member of their family, a friend or a member of their community.
Making A Complaint
When considering complaints about us we always aim to be:
- Impartial to clinical and operational services
- Helpful and accessible
- Clear, timely and thorough, and
- Positive about putting matters right and learning lessons for the future
If you have any complaints or concerns about the service that you have received from any staff member working for Stowhealth, please let your practice know.
We hope that most problems can be sorted out easily and quickly, at the time they arise and with the person concerned and not later than the next working day.
If your problem cannot be sorted out in this way and you wish to make a complaint, we would like you to let us know as soon as possible – ideally within a matter of days or at most a few weeks – because this will enable us to establish what happened more easily. If it is not possible to do that, please let us have details of your complaint:
- Within 12 months of the incident that caused the problem; or
- Within 12 months of discovering that you have a problem.
Discretion can be used if you have good reason for a delay in complaining and if it is still possible to investigate the complaint fairly and effectively.
The Practice Manager at your practice will be pleased to deal with any complaint. She will explain the procedure to you, if needed, and make sure that your concerns are dealt with promptly. You can make your complaint:
- In person or by telephone – ask to speak to the Practice Manager.
- In writing / email to the practice – some complaints may be easier to explain in writing – please give as much information as you can, then send your complaint to the practice for the attention of the Practice Manager as soon as possible.
Please note that details of any complaint logged will not be added to your clinical notes and will not affect your future medical care.
What We Will Do
Our complaints procedure is designed to make sure that we settle any complaints as quickly as possible.
We shall acknowledge your complaint within 3 working days of receipt, and aim to provide a full response within 28 working days thereafter.
When we look into your complaint, we shall aim to:
- Find out what happened and what went wrong
- Make it possible for you to discuss the problem with those concerned if you would like this
- Make sure you receive an apology where appropriate
- Identify what we can do to make sure the problem doesn’t happen again
At the end of the investigation, you will receive a full written reply and/or be invited in to discuss our findings if the complaint is complex.
Consent And Complaining On Behalf Of Someone Else
Any individual that uses services delivered by Stowhealth can make a complaint if they are dissatisfied with a service. However, please note that we keep strictly to the rules of medical confidentiality. Therefore, if you are making a complaint on behalf of someone else we will need their informed consent for you to act on their behalf. If someone lacks capacity to provide such consent we would need to be satisfied that you are acting in their best interests. If the complaint investigator is not satisfied that this is the case, we will inform you in writing, stating the reasons for this decision and any response we may be able to provide will be limited in its content.
Compliments
A compliment is an expression of satisfaction, thanks, praise or congratulations.
All staff who work for Stowhealth strive to provide a high quality level of care for everyone, and we would really welcome your compliments and feedback.
Compliments tell us what we are doing right and are great way that we can learn, and continuously improve our services to you as individuals, and all of our patients.
If you wish to pass on a compliment, we will:
- Record and share with the relevant key people.
- Use learning from compliments to identify what we are doing well.
If you would like to share a compliments about the service you have received, an individual or the practice as a whole, you can do this:
- In person or by telephone – ask to speak to the Practice Manager.
- In writing / email to the practice – marked for the attention of the Practice Manager.
Complaints – What You Can Do Next
We hope that, if you have a problem, you will use our practice complaints procedure. We believe that this will give us the best chance of putting right whatever has gone wrong and the opportunity to improve our services.
However, this does not affect your right to approach the NHS Suffolk and North East Essex Integrated Care Board (SNEEICB) directly if you feel you cannot raise your complaint with us or you are dissatisfied with the way we are dealing with your complaint. If you choose to complain directly to SNEEICB, contacts can be received via email, telephone and postal communications channels, which are accessible as follows:
- Email: sneeicb.complaints@nhs.net
- Telephone: Freephone: 0800 389 6819 (between 9:00am – 3:45pm Monday – Friday, excluding bank holidays)
- Address: Patient Advice and Liaison Service (PALS), Endeavour House, Russell Road, Ipswich, IP1 2BX
Further information regarding SNEEICB Complaints Service can be found here: Patient Advice and Liaison Service – NHS Suffolk and North East Essex ICB
If you remain dissatisfied with the responses to your complaint, you have the right to ask the Parliamentary and Health Service Ombudsman to review your case. The Ombudsman is an independent body established to promote improvements in healthcare through the assessment of the performance of those who provide service. You can write to them at:
The Health Service Ombudsman
Millbank Tower
Millbank
LONDON
SW1P 4QP
Telephone: 03450 154033
Unreasonable Complaints
Some complainants place unreasonable demands on our services by submitting multiple, lengthy requests or frequent repetitive contacts. These contacts dominate our attention and hinder the consideration of other people’s complaints and the services we are providing.
In most instances when we consider someone’s behaviour to be unreasonable, we will explain why and ask them to change it. We will also advise them, that if their unreasonable behaviour continues, we may take action to restrict their contact with us, and some or all of the following formal provisions will be apply and be communicated to the complainant:
- The complaint will be managed by one named individual at senior level who will be the only contact for the patient.
- Contact will be limited to one method only (eg in writing).
- A time limit will be placed on each contact.
- The number of contacts in a time period will be restricted.
- A witness will be present for all contacts.
- Repeated complaints about the same issue will be refused.
- Correspondence regarding a closed matter will only be acknowledged and not responded to.
- Behaviour standards will be set.
- Irrelevant documentation will be returned.
- Detailed records will be kept.
GP earnings
All GP practices are required to declare the mean earnings (e.g. average pay) for GPs working to deliver NHS services to patients at each practice.
The average pay for GPs working in StowHealth Surgery in the last financial year was £89,998 before tax and National Insurance. This is for 2 full time, 8 part time and 3 locum GPs who worked in the practice for more than six months.
However it should be noted that the prescribed method for calculating earnings is potentially misleading because it takes no account of how much time doctors spend working in the practice, and should not be used to form any judgement about GP earnings, nor to make any comparison with any other practice.
Health Risk Screening / Risk Stratification
Health Risk Screening or Risk stratification is a process GPs use to help them to identify and support patients with long-term conditions and to help prevent un-planned hospital admissions or reduce the risk of certain diseases developing such as type 2 diabetes. This is called risk stratification for case-finding.
Risk stratification tools use historic information about patients, such as age, gender, diagnoses and patterns of hospital attendance and admission collected by NHS England from NHS hospitals and community care services. This is linked to data collected in GP practices and analysed to produce a risk score.
Your GP will routinely conduct the risk stratification process outside of your GP appointment. This process is conducted electronically and without human intervention. The resulting report is then reviewed by a multidisciplinary team of staff within the Practice. This may result in contact being made with you if alterations to the provision of your care are identified.
The ICB has agreed with NHS England s251 support for the NHS Number, as an identifier from both NHS England and GP Practice data, to be used to enable this work to take place. The Data is sent directly into a risk stratification tool called Eclipse from NHS England /GP Practices to enable the data to be linked and processed as described above. GPs can identify individual patients from the risk stratified data when it is necessary to discuss the outcome and consider preventative care. Your GP will use computer-based algorithms or calculations to identify their registered patients who are at most risk. Once the data is within the tool ICB staff only have access to anonymised or aggregated data.
Suffolk and North East Essex Integrated Care Board (SNEEICB) also uses risk stratified data with pseudonymised (non-identifiable) data to understand the health needs of the local population to plan and commission the right services. This is called risk stratification for commissioning.
Type of Information Used
Different types of commissioning data are legally allowed to be used by different organisations within, or contracted to, the NHS. Information put into the risk stratification tools used by the ICB:
- Age
• Gender
• GP Practice and Hospital attendances and admissions
• Medications prescribed
• Medical conditions (in code form) and other things that affect your health.
Legal Basis Statutory requirement for NHS England to collect identifiable information.
A Section 251 support approval (CAG 2-03(a)/2013) from the Secretary of State, through the Confidentiality Advisory Group of the Health Research Authority, enables the use of identifiable information about patients included in the datasets.
Data Processing Activities
The practice processes this data internally. Data is also processed by Prescribing Services Ltd (Eclipse) on behalf of the practice. Data is processed by the North of England Commissioning Support Unit on behalf of the ICB.
Opt-out / object details
You have a choice about whether you want your confidential patient information to be used in this way. If you are happy with this use of information you do not need to do anything. If you do not wish your data to be included in the risk stratification service you can choose to opt-out through the National Data Opt-Out process.
Where pseudonymised (non-identifiable) data is being used by the ICB, the National Data Opt-Out does not apply. The data is used in a format which does not directly identify you. You have the right to object to your information being used in this way; however, you should be aware that your objection may have a negative impact on the timely and proactive provision of your direct care. Should you choose to opt-out, please inform your GP practice who will apply an opt-out code to your record to ensure that your information is not included in the programme.
Please contact the Practice Manager to discuss how disclosure of your personal data can be limited.
Population Health Management (PHM) Privacy Notice
Under data protection law we must tell you about how we use your personal information. This includes the personal information that we share with other organisations and why we do so. Our main GP practice privacy notice is on our website. This additional privacy notice provides details about Population Health Management.
What is Population Health Management (PHM)?
This work is aimed at improving the health of both local and national populations.
It is about improving the physical and mental health outcomes and wellbeing of people and making sure that access to services is fair and equal. It helps to reduce the occurrence of ill-health and looks at all the wider factors that affect health and care.
Population Health Management requires health and social care organisations to work together with communities and partner agencies. The organisations will share de-identified information (where information about you has been removed) with each other in order to get a view of health and services for the population in a particular area.
Across Ipswich and East Suffolk and North East Essex a population health management programme has been introduced. The programme will combine this de-identified information from GP practices, community service providers, hospitals and other health and care providers to allow a comprehensive picture of health and care needs to be identified and services planned according to need.
How will my Personal Information be used?
The information needed for this Programme will include information about your health and social care. Information about you and your care will be used in the programme, but in a format that does not directly identify you which we refer to within this privacy notice as pseudonymised.
The information will be used for a number of health and social care related activities such as:
- improving the quality and standards of care provided
- research into the development of new treatments
- preventing illness and diseases
- monitoring safety
- planning services
Your Personal information will be shared with?
Your GP will send the information they hold on their systems to the NHS North of England Commissioning Support Unit (NECS), who are part of NHS England. NHS Digital who already holds information about other health and care attendances, will send the information they hold to NHS North of England Commissioning Support Unit (NECS).
NECS will make the GP data linkable with other local and national data sources to understand the population health more effectively. This process is called Pseudonymisation and any information that identifies you has been removed and replaced with a pseudonym (Unique Code).
The pseudonym will only ever be reidentified if we discover that you may benefit from a particular health intervention, in which case only the relevant staff within your practice will be able to see your personal information in order to offer this service to you.
The pseudonymised data will be sent to a company called Optum. Optum have been commissioned by NHS England to provide specialist analysis of the data to support improvements to the local populations health and to target health and social care resources effectively.
Both NECS and Optum are required to protect your information and maintain confidentiality at all times.
What will happen to my Personal Information when the Project is Finished?
For the NHS England and Improvement/Optum programme, data will be processed only for the duration of the 20-week programme. Once the 20-week programme has completed the information will be securely destroyed from Optum systems.
NECS working on behalf of the practice will retain the practice data as agreed for a maximum of 14 days to ensure that they successfully remove any identifiable data once this is accomplished the identifiable practice data will be securely destroyed. The remaining de-identified data will be used by analysts to provide health and social care statistics for PHM projects for the length of each project as agreed with the practice.
Our legal basis for sharing data
Health Care Providers are permitted by data protection law to use information where it is “necessary for medical purposes”. This includes caring for you directly as well as management of health services more generally.
Sharing and using your information in this way helps to provide better health and care for you, your family and future generations. Confidential patient information about your health and care is only used where allowed by law and in the majority of cases, anonymised data is used so that you cannot be identified.
Under data protection law, we can only share patient data if we have a legal basis under Articles 6 and 9 of the UK GDPR.
Our legal basis for sharing patient data is Article 6(1)(c) – legal obligation, as we are required under the Health and Social Care 2012 Act.
When we are sharing patient data about health we also need a legal basis under Article 9 of the UK GDPR.
Article 9(2)(h) – as we are sharing patient data for the purposes of providing care and managing health and social care systems and services. This is permitted under paragraph 2 of Schedule 1 of the DPA.
Article 9(2)(i) – as patient data will also be used for public health purposes. This is permitted under paragraphs 3 of Schedule 1 of the DPA.
Article 9(2)(j) – as patient data will also be used for the purposes of scientific research and for statistical purposes. This is permitted under paragraph 4 of Schedule 1 of the DPA.
You have a choice about whether you want your confidential patient information to be used in this way. If you are happy with this use of information you do not need to do anything.
National Data Opt-out (opting out of NHS Digital sharing your data)
This applies to identifiable patient data about your health which is called confidential patient information. If you don’t want your confidential patient information to be shared by NHS Digital with other organisations for purposes except your own care – either GP data, or other data it holds, such as hospital data – you can register a National Data Opt-out.
If you have registered a National Data Opt-out, NHS Digital won’t share any confidential patient information about you with other organisations, unless there is an exemption to this, such as where there is a legal requirement or where it is in the public interest to do so, such as helping to manage contagious diseases like coronavirus. You can find out more about exemptions on the NHS website.
From 1 October 2021, the National Data Opt-out will also apply to any confidential patient information shared by the GP practice with other organisations for purposes except your individual care. It won’t apply to this data being shared by GP practices with NHS Digital, as it is a legal requirement for us to share this data with NHS Digital and the National Data Opt-out does not apply where there is a legal requirement to share data.
You can find out more about and register a National Data Opt-out, or change your choice on nhs.uk/your-nhs-data-matters or by calling 0300 3035678.
Stowhealth Privacy Notice
The purpose of this notice is to inform you of the type of information that the surgery holds; how that information is used; who we may share that information with; and how we keep it secure and confidential.
The surgery has a duty to ensure that your personal data is kept confidential, secure and used appropriately.
What kind of information do we use?
There are different types of information collected and used across the NHS. It should be noted that information which cannot identify an individual does not come under the Data Protection Act 2018.
We use the following types of information/data:
- Anonymised data, which is data about you but from which you cannot be personally identified
- De-identified data with pseudonym identifier, which is data about you but we are able to track you through the patient pathway without using your personal information, and you cannot be personally identified
- De-identified data with weakly pseudonym identifier such as the NHS number. We use this to link two or more types of datasets together using your NHS number
- Personal data which you can be personally identified from (this includes information such as your name and address)
- Special category data which tells us something about you (this includes information such as your ethnicity and health information)
We will only use information that may identify you (known also as personal confidential data) in accordance with the: Data Protection Act 2018 – The Data Protection Act requires us to have a legal basis if we wish to process any personal information.
Covid-19 Policy
Our practice has a legal obligation under the COVID-19 Public Health Directions 2020 to share pseudonymised patient data in relation to COVID-19. You can read more about this here: OpenSAFELY COVID-19 Service – NHS Digital
What do we use your information for?
We hold your medical record so that we can provide you with safe care and treatment. We will also use your information so that our surgery can check and review the quality of care we provide, this helps us to improve the service we provide to you. We shall share relevant information from your medical record with other health or social care staff or organisations when they provide you with care. For example, your GP will share information when they refer you to a specialist in hospital or your GP will send details about your prescription to your chosen pharmacy.
Aside from sharing information directly for your care, there are some other purposes that we may share data for, including:
Risk Stratification
Risk stratification is a process GPs use to help them to identify a person who may benefit from a targeted healthcare intervention and to help prevent un-planned hospital admissions or reduced the risk of certain diseases developing such as type 2 diabetes. This is called risk stratification for case-finding. As part of this, our surgery uses a primary care software system called Eclipse.
NHS Digital
NHS Digital is a national body which has legal responsibilities to collect information about health and social care services. It collects information from across the NHS in England and provides reports on how the NHS is performing. These reports help to plan and improve services to patients. This surgery must comply with the law and will send data to NHS Digital, for example, when it is told to do so by the Secretary of State for Health or NHS England under the Health and Social Care Act 2012.
The General Practice Extraction Service (GPES) collects information for a wide range of purposes, including providing GP payments. It works with the Calculating Quality Reporting Service (CQRS) and GP clinical systems as part of the GP Collections service. Find out more here.
Care Quality Commission (CQC)
The CQC regulates health and social care services to ensure that safe care is provided. The law says that we must report certain serious events to the CQC, for example, when patient safety has been put at risk. For more information about the CQC see: http://www.cqc.org.uk/
Public Health
The law requires us to share data for public health reasons, for example to prevent the spread of infectious diseases or other diseases which threaten the health of the population. We will report the relevant information to local health protection team or Public Health England.
Who do we share your information with?
We may share your information with other parties dealing with your care. When we do this we will inform you first unless we have a legal basis. We will not share your information with marketing organisations or other organisations that could cause you harm or lead to intrusive contact.
Some examples are:
- Local Council
- Hospital
- Mental Health Trust
- Ambulance Service
- Care Homes
- Social Care
- Safeguarding
- Integrated Care Board (ICB)
- Clinical system providers
- Police
- Coroner
- Medical Examiners
- Confidential Waste removal company
- Voluntary Sector Organisations
We will keep you informed of how your data is used through this privacy notice, however please note that there may be times when we may not notify you such as for the prevention and detection of crime, safeguarding purposes, or as requested by a Court Order. We will only do this when the law requires us to do so.
Primary Care Network
We are a member of East Suffolk Primary Care Network (PCN). This means we will be working closely with a number of other Practices and health and care organisations to provide healthcare services to you.
During the course of our work we may share your information with these Practices and health care organisations/professionals. We will only share this information where it relates to your direct healthcare needs.
When we do this, we will always ensure that appropriate agreements are in place to protect your information and keep it safe and secure. This is also what the Law requires us to do.
If you would like to see the information the PCN holds about you please contact the Practice Manager. See also your rights as a patient listed below.
Multi-disciplinary Meetings
A multidisciplinary team (MDT) is a group of health and care staff who are members of different organisations and professions (e.g. GPs, social workers, nurses), that work together to make decisions regarding the treatment of individual patients and service users. MDTs are used in both health and care settings.
A list of MDT professionals could include the following:
Nurse Assessors, Social Care Practitioners, Physiotherapists, Occupational Therapist, Ward Nurses, Dieticians/Nutritionist, GPs/Consultants/Other Medical Practitioners, Community Psychiatric Nurses, Police, Care Home/Support Provider Staff, Community Nurses, Specialist Nurses, Community Matrons and Discharge Nurses
MDT In Person vs Virtual
MDTs in their current format necessitate face-to-face contact between multiple clinical teams, they have the potential to act as potent accelerators of viral transmission. This created an urgent need to increase remote working across the health and care system. Teams are enabled to set Virtual MDTs using MS Teams which has given NHS staff a secure tool for instant messaging, video conferencing, sharing clinical information, images, and more
In an MDT, only information that is relevant and necessary for the patient or service user’s care will be shared.
Social Prescribing
Social Prescribing enables GPs, nurses and other primary care professionals to refer people to a range of local, non-clinical services. NHS England describes social prescribing as “enabling all local agencies to refer people to a link worker”. Link workers – known locally as Community Connectors – give people time and focus on what matters to the person. They connect people to community groups and agencies for practical and emotional support. If you have an appointment with a Community Connector, only limited information would be passed on. There are agreements in place to protect your data.
Diabetic Eye Screening
The Diabetic Eye Screening Programme in this area is provided by Health Intelligence after they were awarded the contract by NHS England Midlands and East to continue provision of the service from 1 April 2016. All patients aged 12 and over, with a diagnosis of diabetes will be referred by their GP surgery to the diabetic eye screening programme. You can find more information about this service as www.eadesp.co.uk
Text Messages
Please note that we will use your mobile number to text you with information regarding your care such as appointment reminders, flu campaign etc.
Please let us know if you would not like your mobile number used for any purpose.
Call Recording
Please note that this practice records its calls for training and quality purposes.
How do we keep your information safe?
All staff have contractual obligations of confidentiality, enforceable through disciplinary procedures. All staff will receive appropriate training on confidentiality of information and staff who have regular access to personal confidential data will have received additional specialist training.
We take relevant organisational and technical measures to make sure that the information we hold is secure – such as holding information in secure locations, restricting access to information to authorised personnel, protecting personal and confidential information held on equipment such as laptops with encryption and information is transferred safely and securely.
The surgery does not transfer personal confidential information overseas without adequate protection.
Under the Data Protection Act 2018, the surgery is required to register with the Information Commissioner’s Office detailing all purposes for which personal identifiable data is collected, held and processed.
The surgery has a legal duty to protect any information we collect from you. We use leading technologies and encryption software to safeguard your data and keep strict security standards to prevent any unauthorised access to it.
The surgery will not pass on your details to any third party or other government department unless you consent to this or when it is necessary and or required to by law. The surgery is party to a number of information sharing agreements which are drawn up to ensure information is shared in a way that complies with relevant legislation.
How long do we keep your information for?
There are different retention schedules for different types of information and types of record. In the NHS, all commissioners and providers apply retention schedules in accordance with the NHS Records Management Code of Practice.
NHS data are subject to legal retention periods and should not be destroyed unless specific instructions to do so has been determined and received from the Data Controller.
What rights do I have?
By law you have certain rights related to your information. These are:
| The right to be informed | You have the right to know what information that we hold about you, what we do with it and why. We inform patients through this privacy notice. |
| The right of access | You have the right to have a copy of the information that we hold on you. We must provide this to you within one calendar month and free of charge unless an exemption applies. We may need you to prove your identity before we can release any information to you. |
| The right of rectification | You have the right to have your personal data corrected if inaccurate. |
| The right to erasure | You have the right to have your personal data erased in certain circumstances. |
| The right to restrict processing | You have the right to restrict the processing of your personal data in certain circumstances. |
| The right to data portability | You have the right allows you to obtain and reuse your information for your own purposes. You have the right to have your information in a digital format. |
| The right to object | You have the right to prevent processing of your information in certain circumstances. |
| Rights related to automated decision making and profiling | We must inform you if we do this kind of processing, and offer you a human based alternative. |
If you wish to exercise any of your rights, you can make contact by using the information below:
Stowhealth,
Violet Hill House, Violet Hill Road, Stowmarket IP14 1NL
Email: stowhealth.gp@nhs.net
Telephone – 01449 776000
Practice Manager – Kathryn Parrish
Caldicott Guardian – Dr Lynn Dailey
Your Data Matters
Information about your health and care helps us to improve your individual care, speed up diagnosis, plan your local services and research new treatments. In May 2018, the strict rules about how this data can and cannot be used were strengthened. The NHS is committed to keeping patient information safe and always being clear about how it is used.
The National Data Opt-Out programme is a service that allows patients to opt out of their confidential patient information being used for research and planning.
Patients can view or change their national data opt-out choice at any time by using the online service at www.nhs.uk/your-nhs-data-matters.
Raising concerns
If you are concerned about the way we are handling your information or wish to make a complaint please contact the Practice Manager on 01449 776000
If you still have further concerns then please contact the Data Protection Officer – Paul Cook – email: dpo@snee.nhs.uk
The Data Protection Officer service is provided by Suffolk and North East Essex Integrated Care Board, more information is available at: https://suffolkandnortheastessex.icb.nhs.uk/
If the issue cannot be resolved by our organisation or the Data Protection Officer, you have the right to report it to the Information Commissioners Office (ICO). The ICO is the UK’s independent authority set up to uphold information rights in the public interest, promoting openness by public bodies and data privacy for individuals. You can contact them on the details below:
Phone – 0303 123 1113
Customer Contact
Information Commissioner’s Office
Wycliffe House
Water Lane
Wilmslow
SK9 5AF
Use of your data for Research
All NHS organisations are expected to participate and support health and care research, and through the NHS Constitution pledge “to inform you of research studies in which you may be eligible to participate”.
As a research active practice, we may invite you to participate in research studies that may be of interest to you. This may be done via letter, text message and/or by phone. It is up to you to decide whether or not to take part.
The research we do helps to identify and provide the best possible care for you, your family and community; research, by finding ways to help prevent illness, and improve treatments and services, making sure they are safe and effective and make the best use of resources and by increasing our understanding about illnesses and what it is like for patients living with these illnesses.
The research we do might involve you filling in in a questionnaire or talking to a researcher about your views, or asking your permission for a researcher to collect information from your medical records as well as research looking at testing a new treatment or therapy. Full information about what will be involved will be given to you to help you make an informed choice about whether to participate. Your decision to participate or not to participate will have no bearing on the care you receive from the practice.
Frequently Asked Questions (FAQs)
Will my details be shared with researchers?
No, not without your consent. Any invitation we send you about a research study we are conducting will be sent by the practice. You are free to decide whether to take part. If you are interested, we may ask your permission to pass your contact details onto the research team, but we will only do this if you agree. Agreeing for your contact details to be passed onto the research team does not mean that you have to take part in the study. The research team will give you more information about what would be involved to help you decide whether or not to take part.
Who will have access to my medical notes?
Individuals at the practice may review your medical notes to check you are suitable for a study before you are invited to take part. This is to make sure that the study is suitable for you. No data from your medical records that can identify you will be shared with research teams unless you explicitly consent to this.
If you decide to take part in a study to which we have invited you, full information will be given about the use of your data and who will have access to data from your medical records. You will be asked to consent to sharing of your data in this way if you agree to take part in the study.
When might my details be shared?
Anonymised information (i.e. information that cannot identify you) may be shared for health and care research but no-one will be able to tell that this information is about you. This is important in helping the NHS to run and improve health and care services. If you opt out of sharing your data for research and planning purposes your data will not be shared in this manner.
Where can I find out more information about the use of my data in health and care research?
Further information on the use of your data in research can be found on the Health Research Authority Website: Patient information and health and care research – Health Research Authority (hra.nhs.uk)